Life Blog

Cystic Fibrosis Walk!

Every year the Cystic Fibrosis Foundation holds an event in Walnut Creek to raise funds for research (they actually hold many events across the United States, but we actively participate in this one). I have personally been walking for eight years; the first year Scott and I were together I helped him raise funds for the cause. I dove right in! Scott spent several years on the committee to help plan the event, and I joined the committee while pregnant with the little guy — as Scott began to decline, volunteering for anything seemed impossible, so now, we arrive on the day, with a few wonderful friends and family in tow and show our support.

This year we made shirts that sparked some discussions. Most thought they were awesome, a few had a difficult time with them. For those few people, this is my response: We need to stop sugarcoating this disease. It is serious. If Scott doesn’t get lungs he will die. That is our reality. That is my reality right now. If we want people to actually understand this disease then we need to start talking about it honestly. I have seen several people pass away from this disease recently and it is hard, really hard. I have seen wives left to pick up the pieces of their lives and somehow manage to continue on, several with children. This is our reality, so no, I refuse to sugar coat it anymore. It is time to stop being polite and start being real. Let’s work together, spread awareness, and find a cure for this horrible disease!

Here are some fun pictures from the walk this year! Thank you to my lovely sister and amazing friend Rachel for showing your support. I am touched by your love and commitment to my family. Thank you to all the others who donated!

Thanks to all of you who support the CF Foundation, they are doing incredible things for this disease. I truly hope that one day CF can stand for Cure Found!

Breathing in the love and support,


P.S If you want one of these cool shirts, follow this link. All net proceeds will be donated back to organizations that provide support and research to those with CF!

2 thoughts on “Cystic Fibrosis Walk!”

  1. Ashley, I cannot even begin to imagine what you and Scott deal with on a daily basis. I just wanted you to know that I changed the charity contributions on every purchase I make through Amazon to Cystic Fibrosis Research in Palo Alto. I liked that it is national as well as local. It may not be a lot (actually, sometimes as much as I spend at Amazon, it could add up to quite a bit LOL), but every bit that is able to go to research helps. By the way, Seeley has grown quite a bit since the last time we saw him! Hang in there, you guys have a big support system. Hugs to you.


    1. Thanks for doing that Margaret! Every little bit counts — I love that Amazon does this!
      Yes, Seeley is becoming a little man, where has the time gone?! He is a such a big blessing in our lives.


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