Every person dreams of their happily ever after. As a young child I thought about this often; I knew that one day I would meet the man of my dreams, settle down, and have children. Life would be perfect, easy, predictable — isn’t that what all those romance movies have been feeding me all my life? Fast forward to now and I ask myself, is my life perfect? Easy? Predictable? Far from it! But you know what, I wouldn’t have it any other way.
I met Scott on a dating website. I remember reading his profile online and thinking this guy is honest, maybe a bit too honest. I had never heard about Cystic Fibrosis before, but I thought to myself, it couldn’t hurt to meet him (plus he was super cute!), so I messaged him! Our first date was the best date I had ever been on and now, almost seven years later, I am so happy I took that chance. Although living life married to a man with CF can be difficult, heart breaking, overwhelming, and unpredictable it can also be full of excitement, joy, and unconditional love. He is the most courageous and strong individual I have ever met. He has such a big heart and an ability to illuminate joy in all that he does. He is my inspiration. He might have CF, but he doesn’t let it stop him from living life. We have traveled to many places; climbing endless amounts of steps in Europe, zip lining in the Caribbean, and have visited the beautiful green hills of Ireland to name a few. We have not let this diagnosis dictate our lives. And now, as recent parents to the most adorable, CF free, little baby boy we are experiencing a whole new aspect to this exciting life! Learning to navigate life as a new mom and trying to balance that with being a CF’ers wife can be challenging. I am exhausted most days, but it is completely worth it when I get to see Seeley smiling and laughing with Scott. He is the most loving Papa ever! We are both so lucky to have him.
Through all the ups and downs of this life Scott and I have created an unbreakable bond — a bond that I could have never dreamed of. I happily chose this life, knowing full well what my future would be like. That is hard for some to understand. Each day I wake up, regardless of the situation, thinking this is my happily ever after. Do I worry, yes, do I cry, often, do I struggle with the fact that my son may end up fatherless, absolutely, but I refuse for these feelings to stand in the way of my happiness. I choose to be positive, even as my husband slips towards the need for transplant. I choose to live for the moment and to find joy in every minute. My life may not be categorized as perfect or easy, but it is definitely filled with an overwhelming amount of love and that’s all this girl could ever ask for.
Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.
In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
Learn more about CF at About Cystic Fibrosis | CF Foundation—